Illustrative estimate only - not verified by this sponsor. Contact the study team for actual compensation.
African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings. Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.
What happens when you apply
Reach out via phone or email to express interest
Brief call to discuss your health history
Medical screening at the research site
Begin your journey in the study
Inclusion Criteria: Aim 1.1 Person with serious Illness: * Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino * Age ≥60 years * English-speaking * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys. Bereaved family member: * Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino * Age ≥60 years * English-speaking * Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys. Exclusion Criteria Person with serious illness: -Cannot be receiving hospice care Bereaved Family Member: -Cannot be a paid "sitter" Inclusion Criteria: Aim 1.2 Bereaved Family member: * Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino * Age ≥60 years * English-speaking * Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys Pastors: * Self-identifying as African American * White, Non-Hispanic or Latino * Sged ≥18 years old. Inclusion Criteria: Aim 3 Clinician eligibility: * Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys * At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys Exclusion criteria: -Lack of at least 3 months of clinical practice at the study site prior to the intervention training. Patient eligibility: * Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino, 3. age ≥60 years * English-speaking * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys. Exclusion criteria include: -Currently receiving hospice care. Family member eligibility: * Age ≥ 18 years * English-speaking * Community-dwelling * Unpaid care provider of a person with a serious illness. Exclusion criteria: 1. Cannot be a paid "sitter".
imaguineapig pulls live data from ClinicalTrials.gov (NIH/NLM).Illustrative estimate only - not verifiedPay estimates are approximate ranges based on study type and are not confirmed by sponsors — actual compensation may differ. Eligibility indicators use limited criteria (age, sex) only. We do not provide medical advice. Always contact the study team directly to confirm compensation, full eligibility, and risks before enrolling.